how am i? well, i've been better
Jul. 23rd, 2016 01:04 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)

My diagnosis came in around that time: Guillain-Barré syndrome. It's an autoimmune disorder where the immune system, triggered by an infection, attacks the peripheral nervous system's myelin sheath. In addition to the paralysis it caused, it also affected my autonomic systems, which made a mess of my blood pressure, heart rate, and even my insulin levels. My paralysis was particularly severe, rendering me almost unable to move between my ankles and the top of my head. I required a tracheostomy in order to continue breathing, as well as a feeding tube to maintain my nourishment.
After spending five weeks in the hospital, I was moved to a skilled nursing facility and spent 100 days there, near the end of which my breathing and feeding tubes were removed. I was then accepted into Kaiser's acute rehabilitation facility, which we had been told was very highly regarded; after arriving there, it lived up to the hype and I made much more progress in the three weeks I spent there. I've now been home for three weeks and it feels really good, despite the fact that I'm still unable to stand or use my arms and hands (I am using Dragon for Mac to dictate this).
The road ahead still has a lot of physical and occupational therapy. I am in excellent spirits, however, and will keep working hard to return to normal, or at least as close to normal as I can. Through this all, I've had amazing support from family and friends, in particular my friend Morrisa, my stepson David, and most of all my wife Kim, whom I love more with every passing day.